1. When did you notice you had the symptoms of Parkinson's Disease?
8 1/2 years ago when I was 39.
2. What kind of exercises do you do for your PD?
Not near enough due to fatigue and Pain.
3. How many years have you had PD?
Who knows? I can now see signs well before the tremor started 8 and a half years ago.
4. What type of Parkinson's Disease do you have?
Young onset.
5. What kind of medications do you take?
carbidopa Levadopa & amantadine
6. What therapies do you go to?
I have been to physical therapy but now just go to support group.
7. What kind of medical treatments did you have to go through?
Lots of tests. 2 MRI's, a spinal tap or Lumbar Puncture. I had to have a camera pushed down my throat and an ultrasound on my neck.
8. How has Parkinson's Disease changed your life?
PD has changed my life in many ways. I have met some wonderful people that I would have never met. I have been to Washington DC three times to lobby my congressmen and senators re: PD issues. On the downside, I spend a great amount of time watching TV. I no longer Hike, Camp, rollerblade or ride my bike due to Parkinson related pain. I spent almost 30 years working in dental offices as an assistant & office manager. Assisting is impossible with the tremor, and working at the desk for 8 hours a day is out due to pain.
9. Do you have a caregiver who can help you when you have trouble?
I have many people who help me out.
10.Do you have side affects from the medications you take? Such as drooling or ankle swelling.
I don't drool. My ankles are fine. I think my only side affects are dry mouth and the rolling dyskinisa on my right side.
11.Does your Parkinson's Disease seem to have gotten progressively worse overtime?
YES
12.Does anyone in your family have or had Parkinson's Disease?
NO
13.Has Parkinson's Disease affected your weight in any way?
At first I gained, now I have lost but I'm not so sure it isn't just change in my eating habits.
14.Has your Parkinson's Disease been related to any prior head injuries?
Not that I know of. I did hit my head many times as a child. I was queen of the "goose egg". I also had meningitis as a child .
15.Do you need any special equipment to get around with the Parkinson's Disease?
No
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